We all know only too well how difficult
it can be to find help, how disheartening and painful it can be to
find understanding and support .Through so many stories
sufferers and parents we learn about the devastating effects
outdated therapy programmes can have on the sufferers.
But we have a choice
There are good experiences and bad
ones , we can let others know of them.
We can let others know where they can
find help and where not .
Sharing our experiences gives us hope
and it gives the professionals ( doctors and therapists ) the
opportunity to learn from us and most of all from the sufferers
themselves, it gives the politicians the opportunity to realise " so
much has to be done !"
Together we are stronger !
We would appreciate
very much if you could write to us in an e-mail ( if you wish
anonymously) about your own experiences in finding help , support (
financial as well ) and understanding .
WE would be honoured
to have all your experiences on this website